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Lupus Handbook for Women: Up-to-Date Information on Understanding and Managing the Disease Which Affects
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About Lupus Handbook For Women: Up-to-Date Information On
Product Description A complete Guide for Women with Lupus The Lupus Handbook for women provides all the information a woman needs to understand the disease, its diagnosis, and the treatment. It will answer her questions and help her to work with her doctor in managing the disease. Rheumatologist Dr. Robin J. Dibner, in clear and supportive terms, tells women what they need to know, including: * What lupus is, how it affects the body, and why women are particularly vulnerable to it (90 percent of Americans with lupus are women) * The three different types of lupus (discoid lupus, systemic lupus erythematosus [SLE], and drug-induced lupus) * How to get a correct diagnosis and understand the tests (because the symptoms are often mistaken for those of other illnesses, it can take three to five years to get a definitive diagnosis) * The pros and cons of the various conventional drugs and therapies * What the new, experimental treatments are, whom they are for, and what their risks and benefits are * How to use stress control, diet, and exercise to prevent flare-ups and maintain health * How to keep lupus from interfering with a normal dating and sex life and with the development of healthy relationships * How to have a safe, though high-risk, pregnancy The Lupus Handbook for Women also includes information on the major lupus research centers, support groups, and other sources of help and information. About the Author Robin Dibner, M.D, is a clinical rheumatologist. She is the Associate Director, Department of Medicine, and Medical Residency Program Director, at Englewood Hospital and Medical Center in Englewood, New Jersey. Dr. Dibner is also Assistant Clinical Professor, Department of Medicine, Mount Sinai School of Medicine in New York City. Excerpt. © Reprinted by permission. All rights reserved. Chapter 1 What Is Lupus? At one time, lupus was considered a rare disease, but, thanks to better diagnostic techniques and greater awareness on the part of physicians, we now know that is it far more common than we ever thought. About five hundred thousand Americans have lupus, and more than 90 percent of these are women. About sixteen thousand new cases are diagnosed each year. (Asian, African-American, and Hispanic women appear to be at somewhat higher risk for lupus than Caucasian women.) Notably, lupus is more widespread than many better-known diseases, such as leukemia or multiple sclerosis. Lupus typically strikes women of childbearing age -- usually between fifteen and forty -- however, it can also occur in very young girls and postmenopausal women. In rare cases, infants of mothers with lupus or other connective tissue diseases may be born with neonatal lupus, a transient form of the disease that usually disappears within six months. I woke up one morning with a strange pain shooting from my neck down to my shoulders. I felt a lot more tired than usual. I went to see my doctor who decided to test me for "the Three L's": Lyme disease, lupus, and leukemia. The tests were negative for all three, so he decided to treat me for Lyme and put me on very high doses of antibiotics. I went away on vacation and did a lot of sunbathing. I got a bright red rash all over my face, even in my scalp, and I was sore and puffy everywhere. When I came back, I went to another doctor, this time a rheumatologist, who took one look at me and said, "You don't have Lyme disease, you have lupus." Sarah, thirty-three I was feeling ill with all kinds of funny symptoms. I'm normally very active, but I felt exhausted. It was a weird kind of exhaustion. No matter how much I slept, I still felt tired. I felt achy, I had floating arthritis. A joint would hurt one day, and then another joint would hurt the next day. Another strange thing -- I couldn't close my jaw. It felt as if my dentist had put a filling in the wrong way. I went to an orthopedist and he said, "Well, you must have strained yourself lifting something." I went to another doctor,
